I had known of this website since Jay was born. I found that there are a lot of people out there that either have PFFD themselves for parents whose children have PFFD. www.pffd.org I think it is a great site and I don't get on as often as I used to but I will be sharing our experiences with Jay on it. I do plan to upload new photos of the boy once I can manage to get him sitting still longer enough to take pictures. Since he is turning three soon he is just full of energy and starting to push boundaries.